My story: an explanation in short form.
I grew up in the Midwest, raised by New
England parents who had moved to follow work. As soon as they retired, they
moved back east. I followed a short time later, wanting to raise my daughter near family. Being close to the ocean, and away from the outskirts of Detroit made for an easy decision.
When I was in high school I thought I wanted to be a fashion
designer, and started on that path, but followed a detour and worked in sales,
management and finally HR Management as a career. I became a mom, and
shortly after, a single mom. Next, a career mom, and finally a stay at home mom.
I had active lupus for 13 years before
finally getting a (confirmed) diagnosis, and treatment. Lupus can do a lot of damage if
left untreated for that long so I feel lucky that: 1) I lived through it;
2) I kept all of my organs 3)the organs are back to functioning
almost normally, and most importantly I was immeasurably relieved to learn that everything was real because I had secretly started to worry that I was just lazy .
A dozen years of chronic pain and fatigue, headaches, and not enough oxygen took me down an unplanned path. Priorities changed. A career was put on the back burner and what little time and energy available was spent on my family. Coming out the other end of the tunnel, the house has suffered, and I have no savings, but it was the right choice.
A dozen years of chronic pain and fatigue, headaches, and not enough oxygen took me down an unplanned path. Priorities changed. A career was put on the back burner and what little time and energy available was spent on my family. Coming out the other end of the tunnel, the house has suffered, and I have no savings, but it was the right choice.
It was during this
period that I quit working outside the home and began selling vintage clothing
on EBay and Etsy. Just a bit here and there when I find something really good. Like everything else
right now, I do it in fits and spurts. No excuses and no apology. I get to it
when I get to it.
Today I feel better than I have in over a
decade, yet am still not accustomed to the physical limitations which I assume
are temporary. I can’t really gauge how much energy I have to expend
because the limit is different every day. I’m always the person asking
“how hard can it be?” and running full speed ahead before finding myself
suddenly knocked on my ass. As frustrating as that is, I think it a better way
to live (for me) than trying to stay within invisible boundaries.
I thought I might make this blog about
starting over while dealing with an invisible chronic illness but doubt I can
add anything of value to that conversation. Compared to others living with an autoimmune
disorder, I seem to be rebounding quickly. Most days I have it face down on the
mat in a half nelson, listening to it cry “uncle”.
Maine Salvage & Rehabilitation is about
repairing, reusing, and finding a new life for older things.